Miles is so sick.
He stays sick.
He's been on antibiotics since July. He hasn't been off of them. He's been on steroids, breathing treatments and antibiotics. He's been in and out of the hospital since January.
I didn't go to church yesterday because I knew he would choke and cough and gag during the whole service.
Today I went to buy him more stuff to try, in hopes of staying out of the hospital this Christmas. Right now it doesn't look good.
On the 22nd I'm taking him to Ft. Worth to see a Pulmiologist. He will see if there's anything we can do to make his lungs heal from this on going pneumonia. If I were to take Miles to see him today with his lungs sounding the way they do I'm just about positive that he would admit him in the hospital. How is he going to sound better by the 22nd? That's only three days away from Christmas and I will be stuck in Ft. Worth without my family if he gets admitted. I know that's a couple of weeks away, but it's not getting better. It's only getting worse. Every month it's getting worse.
The other day I suctioned that kid for 2 and a half hours and you wouldn't believe that amount of mucus he had. I don't know where he can keep that much stuff in his little body. He's sleeping almost all day long. He won't eat. He's being fed almost exclusively by the g-button. You can hear him breathing in the other room.
It's sad. I feel terrible for him. I can't imagine feeling as bad as he has for as long as he has.
He needs freedom.
He needs a miracle.