Monday, March 17, 2008
Here's What's Going On...
We have to stay another night. Miles' body temperature was freaking everyone out. He already has a low grade temperature. I have to reassure them all the time of this. But, it did get really low. It was down to 90 degrees. That happened the last time we were at the hospital in January. I’m thinking that it happens a lot. More interesting info about that one later.
Also, his procedure was at 8:00 this morning and he didn't wake up until 3:00 this afternoon, again, freaking out by the nurses. It’s probably because of his temperature that he was so hard to wake up. Again, more details about that one later.
The good thing is that the test came back positive. His body responds very well to the baclofen. His body is so free right now. The doctor just came back in to check on him and told us that it was like "Cinderella" at night the medicine will wear off and his body tone will go back like when we came.
The shocking news is that the doctor wants to put this pump in Miles in two weeks instead of in a year from now. He totally agrees with me that Miles needs freedom in his body. He will be the youngest to get this pump. Tomorrow the neurosurgeon will be in to see Miles and tell us if he can possibly fit it in him body. As with everything with Miles I have mixed feelings about this. Part of me is so dang excited because it will mean that Miles will have continuous ability to move his arms and legs. He hasn’t been able to do this in so long that I can’t even remember it. Of course the other part of me absolutely detests the thought of something foreign in his body that is hooked up to his spine. I’m sure you understand.
So, that’s the update. Randy and I are getting another luxurious night in the hospital.